This 2024 scoping review identifies the many unmet needs faced by people living with IPF. Drawing on over 10 years of literature and involving public participants, the research highlights consistent gaps in care—especially emotional, informational, and social support.
Patients often struggle to access coordinated services such as pulmonary rehab, mental health support, or palliative care. Many report receiving fragmented or unclear information at the point of diagnosis, leading to fear and confusion. The review also notes the lack of culturally sensitive and age-appropriate care planning tools.
The authors advocate for more inclusive, patient-centred care models. They suggest healthcare providers offer clearer communication, family involvement, and better long-term planning to support people from diagnosis through disease progression.
