This 2021 Belgian study explores the experiences of both patients and healthcare professionals navigating the IPF care journey. Through a series of in-depth interviews, the study reveals emotional reactions to diagnosis—ranging from denial to relief—and identifies the confusion many patients face when first entering care.
Healthcare professionals shared their own challenges, including poor inter-team communication and fragmented service delivery. They called for more structured follow-up, emotional support services, and consistent messaging to patients.
The study concludes with recommendations for improving IPF care through better coordination, more timely information, and greater psychological support. It underscores the value of involving patients and families in shared decision-making and long-term care strategies.
